Life with Coco and Gigi... and Jack-Jack too!

Life as a Mom, A Homesteader, A Blogger and A Wife.

Today's Appointment

Sorry it took so long to post, boy was it a long day. Ok, so we had our full day of testing at CHOP. The day started when I awoke (way too early) at about 4 o'clock. I didn't need to get up til 5:45 but I was very anxious. My Mom picked me up at 6:15 and we headed to the city. We arrived at around 7 and went right to the MRI. I got in a gown, took off my jewelry and got ready for what I thought would be a quick and easy test. Little did I know that MRI's are terrible. I am usually a very calm individual, but my goodness was it hard to sit still and not panic. About 45 minutes in I thought my back was going to break. The babies were dancing and jigging, so it took over an hour. My poor Mom stayed in the room with me for company, although we couldn't really talk.

After that I filled out paperwork at the Fetal Center, and the people there were so nice. I went to University of Penn for a Level II u/s. That was a very long 2 1/2 hours! Laying on my back for that long was killer. They didn't really tell us much so for the whole thing my Mom or I would have to ask what they were looking at to get any answers. They took lots of measurements and we got to see the girls. First they were both head down, but Grace flipped during the u/s. Abby fell asleep and was yawning and sucking her thumb. Grace was busy dancing a jig.

After the u/s Bry met my Mom and I for lunch and we then headed for the Echo. The tech could not get Grace to hold still so it took forever. She looked like she was a gymnast in there. After over an hour of trying to get pics the tech told us that the hearts looked great. So at this point it was about 3 o'clock and I was exhausted and my back ached. We had to wait an hour for the meeting with the docs. The wait sucked cause it was all boiling down to this. I had no idea what to expect based off of the day so far.

They took us into this conference room which was very intimidating. Made me feel like the three of us were going before the firing squad. After a couple minutes Dr. Johnson and another doc who is studying under him entered. Dr. Johnson is a well-renowned High Risk OB and Perinatologist. He was very warm and personable, however his student doc was cold and not as nice. We exchanged pleasantries and he asked some bio questions.

We then got down to business. He brought in a model brain and gave us an extensive and thorough lesson on brain development and anatomy. He then explained what we are dealing with. Abby had a ventriculomegaly, which is dilation of one of her ventricles. The dilation went down from 13mm four weeks ago to 11mm today. This puts her only 1 mm above the norm of 10. We were ecstatic to hear this. He also explained that there is no aqueductal stenosis, which was originally feared. Of all the potentially detrimental causes, he found no evidence to prove them. He explained that there is a possibility of a chromosomal abnormality like Downs Syndrome. He then explained that it is very unlikely b/c there are no other hallmarks (facial deformity, heart defects, bowel defects, shortened bones, etc.) and many hallmarks were looked for. He told us that "in his heart he felt that everything was going to be just fine." More beautiful words were never spoken. If the dilation continues to decrease she will be back in the normal range. The cerebellums have grown beautifully although they are only slightly smaller than the norm. All in all it was wonderful news. They will continue monitoring it and have advised for an amnio (which I am thinking about).

Now, on to little Gracie. They have conclusively found that she only has one kidney. Not a huge problem. Her existing kidney is enlarged which is good b/c it is compensating for the lack of a second. They did find a small tissue mass that is next to her kidney. They believe it is either a tissue mass or a shrunken 2nd kidney. They will keep an eye on it in case that it is a tumor.

So it was a long, rough day but yielded such positive information. We are feeling so hopeful and so relieved that everything is going to be just fine. Thank you to everyone who has been praying so hard for us. It worked!!


Nickie 11:16 PM  

What great news on Abby!!! You go little girl!!! I hope the dilation continues to go down and then stays in the normal range.

So, they're not worried about Gracie's one kidney? It's great that the other is compensating! Are there any longer term issues she might be facing or is it just too soon to know?

What a day for you! I can't imagine having to be flat on my back that long and my back isn't even bothering me at this point. Get lots of rest tonight knowing that your little princesses are doing great in there - good job mom!

Nichole 11:26 PM  

Awe! I am so thankful that you got such great news today! I'm praying for you and your little girls!

kewd 11:56 PM  

I am so happy to hear this :) I was thinking of you all day!

Wendy from FF

Mandy 12:35 AM  

Been thinking of you all day here as well. The news about Abby is wonderful. Brings tears to my eyes. I'll continue to hope/pray that the numbers go down even further to "normal" range.

Maybe I totally missed it, but I don't ever remember you saying anything before about Gracie's kidney(s). And I feel horrible if I missed grandpa lived for years and years w/ only one. Hopefully she'll never encounter any problems b/c of it.

Hope that you get a good night's sleep tonight. I'm sure this is a huge weight lifted off of your shoulders!

Sara 7:56 AM  

That's fantastic news! Sorry about Grace's kidney, but it doesn't sound like that's a huge problem.

This must be such a huge relief for you. Yay!!!!

Kristin, Rod, and Miss V 9:38 AM  

Just one more example of the miracles that happen in our bellies. The doc's words brought tears to my eyes! What a great ending to a long day. Sorry it took such a toll on your back. Go get another massage! You deserve it! I've heard of so many cases where "issues" detected in utero are solved on their own by the time the baby(ies) are born. Either way, Mandy's words are encouraging as well. Keep doing a great job growing your little girls!

seattlegal 7:55 PM  

I've been waiting to hear from you all day. I'm glad that things went well! I hope that they continue to go well. I have an aunt born with only one kidney and she is doing very well.

ovaryovation 1:12 PM  

Fantastic news! I'm so happy that Abby is doing better and that they are not too worried about Gracie's kidney. I'm sure you are feeling so much better after Friday's appts.

Lindsey 4:15 PM  

That is wonderful news Kristen! I am so glad that the situation is not nearly as bad as you feared. God is in control! :) Still praying for you and your back pain and the rest of your pregnancy! Love, Lindsey

Mich 8:57 PM  

I can't even begin to imagine how relieved you two must feel...

Thanks for the great update and keep up the good work :)

Anonymous 10:21 PM  

Oh that is so wonderful about the girls, I was so worried about you and them but it looks like you and any your husband are ready to take on the world when it comes to these girls.You are all very lucky to have one-another.

We have both had a scare now as parents but you said it best.Each day you are so lucky to have them in your lives.

Keep up the good work you are already loving you children uncondtionally.

Onebabyplease(ff)adopting neices babygirl in June 07



About this blog

Over 8 years we have struggled through 3 IUI's, 6 rounds of IVF, several RE's, hundreds of appointments and the loss of three little angels. Now we find ourselves the proud parents of two perfect little girls and a wonderful little boy!!

Both of our girls struggle with some disabilities but that won't keep us down. Each day has it's own brand of insanity but we love it. Most days I am more monkey wrangler than mother but I do the best I can. Todays goal - getting to tomorrow.

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