Life with Coco and Gigi... and Jack-Jack too!

Life as a Mom, A Homesteader, A Blogger and A Wife.

PT Update

We had both a frustrating and insightful PT session this week. Abby has really hit the wall in terms of frustration with her PT. She spend a good part of the day screaming and throwing hissy fits when she can't go where she wants to go. If I sit her down to go do something she goes nuts. I had decided I was going to really lay it all on the line for Yemi and tell how frustrated we both are. I'm glad I did. We talked about how we have done the strength training piece and now we have to work on retraining her brain and neural pathways to over ride the corpus callosum problems. We also talked about a few devices (belly board, walkers, etc.) that we might be able to employ. We also agreed that we need to focus more on the crawling piece and less on the standing.

For the past couple weeks we have started some exercises to eventually pull up and cruise furniture. The problem is that she is weak and has severe balance issues. At this age in PT they don't typically push crawling much for fear that if they do crawl it will only delay the end goal of walking even more. So we are going to forgo the exercises that prep her for walking and focus on what might get her crawling and rolling.

The most frustrating thing is that she is almost 14 months and therefore smart enough to realize that her sister is moving around and she isn't. She gets so upset when I go to the kitchen and Grace follows while she is stuck in the living room. The frustration has gotten so high. It sucks that she is going to need PT for a long time. It sucks that it is all so damn hard for her. It sucks to watch her watch her sister make leaps and bounds developmentally. It sucks that I have to watch her cry and scream every day knowing that I am the one making her cry.

Hopefully we will have some progress soon!


Mich 7:48 AM  

You aren't the one making her cry! You're doing an awesome job and she'll thank you for it one day.

Regardless, I can't imagine how frustrating all of this must be...for both of you :-(




About this blog

Over 8 years we have struggled through 3 IUI's, 6 rounds of IVF, several RE's, hundreds of appointments and the loss of three little angels. Now we find ourselves the proud parents of two perfect little girls and a wonderful little boy!!

Both of our girls struggle with some disabilities but that won't keep us down. Each day has it's own brand of insanity but we love it. Most days I am more monkey wrangler than mother but I do the best I can. Todays goal - getting to tomorrow.

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