Today we had our neurology follow up for Abby at CHOP. She got measured and is still under 19 lbs. Her head size is large but they felt it was okay considering the fluid. The nurse did refer to her as a "frequent flyer" today, which oddly enough I thought was hysterical. I even asked if we get airline miles or something.
The doctor felt she is making good progress in her development. He is pleased with the interventions she is getting and wants to add OT and some supplemental classes (tumbling, swimming, music) to her repertoire. We're just waiting for her DDD to come through and the holidays to be over to start those. He is referring her to Neuro-Genetics for assessment. If we knew what caused this we might have better information in terms of her prognosis. We know cognitively she is above her adjusted and actual age. The rest is lagging and it would be nice to know what the expected outcome is. I guess we'll see. So for now, all is well and we will keep plugging along.
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2 comments:
Glad to hear that Abby's appt went well! I was thinking about you earlier but just couldn't get a minute to call.
Too bad you didn't get airline miles!
I was thinking we coulda used them to visit Aunt M. :D
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