Neurogeneticist

I FINALLY was able to make Abby's neurogenetics appointment today. The doctor who we will be seeing at CHOP is world renowned and very hard to get into. We're hoping to get some more information on Abby's condition. I would really like to know as much as I can about her future so I know what to be planning on. We're always careful since we don't want to limit her. If someone told us that she would have been completely unable to walk, would we have pushed her as hard? KWIM?

So we're trying to get as much info as we can while still relying on her individuality and tough spirit. We don't see the doc until early March but we were expecting June so that is great news.