Life with Coco and Gigi... and Jack-Jack too!

Life as a Mom, A Homesteader, A Blogger and A Wife.

First OT Session

Yesterday we had our first meeting with Abby's new occupational therapist. She was FANTASTIC. She is a Mom of a special needs child herself and has suffered the loss of a child shortly after birth due to a genetic mutation. As odd as this sounds knowing that she has dealt with some of the issues we deal with endears her to me. She was so energetic and so open about her own family experiences. She was so wonderful with the girls (BOTH OF THEM!) and was a breath of fresh air after our ST experience.

We focused a lot on Abby's feeding issues. Because of her sensory issues she tends to stuff her mouth full until the point that she cannot chew. It's partly her weak chewing muscles and partly seeking sensory input. Spicier foods will help a little but we have some great strategies to work on. Hopefully we'll be on our way to self-feeding and using utensils!

We also started working on her flapping, arm and foot twisting and rigidity. I think the OT is going to work so beautifully in conjunction with her PT.

Tomorrow morning we are headed to the hospital early for her high res. MRI. She has to be sedated so she has to fast. I hate having to try to hold her off with no food. She is an eater so it isn't easy. She can have jello and juice up until 7am so we'll get her up early to load up on those things. We're just praying that this MRI yields a lot of great information for the neurogenetics team so they know what genetic tests to run. Fingers crossed...

3 comments:

Ashleigh 11:26 PM  

fingers DEFINITELY crossed and LOTS of prayers!!!

Plant Girl 12:06 AM  

Goodluck tomorrow! I hope that everything goes smoothly.

Hopeful Mother 11:24 AM  

Kristen, I've been reading your blog for a while.

Our Al.ex (19 mo twin) seems to have some similar things going on with sensory aversion and eating, and I am worried about his arm flapping behaviors. Would you be so kind to email me with some more details of Abby's sensory issues and what the OT says about them? Al.ex has a tentative diagnosis of CP but it is the more rare hypotonic variety.

Thanks!

I hope you get some useful answers from the MRI.

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About this blog

Over 8 years we have struggled through 3 IUI's, 6 rounds of IVF, several RE's, hundreds of appointments and the loss of three little angels. Now we find ourselves the proud parents of two perfect little girls and a wonderful little boy!!

Both of our girls struggle with some disabilities but that won't keep us down. Each day has it's own brand of insanity but we love it. Most days I am more monkey wrangler than mother but I do the best I can. Todays goal - getting to tomorrow.

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