Life with Coco and Gigi... and Jack-Jack too!

Life as a Mom, A Homesteader, A Blogger and A Wife.

Every little thing

I know that I have spent enough time recently whining about all of the recent woes of parenthood. I have been trying to keep all of the "RS Abby stuff" on her RS blog but I also don't want to omit everything. So I try to keep the normal parenting stuff here and the RS stuff over there. So much of what we are dealing with is typical parenthood stuff. The problem is that teasing the two apart is getting harder and harder. She flaps and spins... RS. She whines when she can't have cookies for dinner... being a kid. But what about the out and out terror she is having at night about going to bed? It could be just being a kid but we also can't discount the idea that it is rooted in her disease process. So this is the most recent struggle (amongst many others).

We go to the doctor and they ask us what new symptoms she is having RELATED TO HER CONDITION. I feel like it is such a loaded question. It isn't like you can pull apart the typical and atypical parts and see one from the other. So instead I find myself fumbling for words. I am doing my best to coordinate it all but frankly it is time to get some help.

It has been hard. Her fixations, obsessions and tantrums are getting worse and more frequent. We have a couple of "balls in the air" in regards to getting her a behavioralist. Hopefully something is going to pan out sooner rather than later. For now these two are keeping me on my toes.

1 comments:

Christina 7:45 PM  

I hope you guys find something to make her feel better. I can hear the sadness from your words..I can't imagine the frustration when you can't fix it. Hang in there!

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Over 8 years we have struggled through 3 IUI's, 6 rounds of IVF, several RE's, hundreds of appointments and the loss of three little angels. Now we find ourselves the proud parents of two perfect little girls and a wonderful little boy!!

Both of our girls struggle with some disabilities but that won't keep us down. Each day has it's own brand of insanity but we love it. Most days I am more monkey wrangler than mother but I do the best I can. Todays goal - getting to tomorrow.

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