When the girls were little we had the usual sleep problems. Trouble falling asleep and waking up throughout the night. Back in those days it was either for a bottle, a diaper change or someone being sick. I hated those long nights when sleep felt so far away.
Here we are three plus years later and we all still struggle with sleep. It is such a commodity for us that we could buy and sell it (if we could). Now it is different issues. Now we deal with both girls sensory systems being "integrated" enough each night to get them to sleep. If they are too stimulated or not stimmed enough we all pay for it. Then you add Abby's strange anxieties to that and we have more trouble. A couple months back she had a nightmare about a bee trying to sting her. Ever since then she fixates on bugs being in her room trying to sting her. When she is awake she has no fear of bugs but when night rolls around it gets ugly.
We put the girls to bed usually around 8:30 and most nights it is after ten before they stop talking, crying, yelling, whining, etc. Sometimes it goes on until after 11 or 12. It is so taxing for us as parents. That time after the kids go to bed but before the parents go to bed should be parents only time. Time to talk, or clean, or work, or catch up on the computer. We lack that and it shows. Some weeks we are both so spent that we barely speak after they finally conk out.
This is an issue we hope that the behaviorist can work on with us. Maybe by giving us some strategies that we haven't tried we could find a better mix. I don't know though. This could just be part of our long term reality. Hopefully not but one never knows.
The beauty of a rare diagnosis... the unknown.