Life with Coco and Gigi... and Jack-Jack too!

Life as a Mom, A Homesteader, A Blogger and A Wife.

Keepin it interesting

I took abs for what I thought was her "everything's fine" appointment today. It looked like all was fine. The doc seemed fairly pleased with the minimal change on her scan. 


We talked for almost an hour about her rhombencephalosynapsis and what it meant for her. Then she got to the physical exam. When she looked in her eyes she looked too long. She glossed over it and said she wante us to see her ophthalmologist ASAP. She saw swelling in the back of her eyes. 

She suspects a papilladema which is swelling in the optic disks caused by intracranial pressure. So now we have to go to her eye doc next Friday to start figuring out what it is and why. 

So I guess the roller coaster wants to take us for at least one more spin. 

2 comments:

Plant Girl 10:41 AM  

Just keep taking deep breaths and remember you've got a huge support group to help you get through.

((hugs))

MaggieL 7:34 PM  

More hugs and kisses.
Much love
<3 <3 <3

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Over 8 years we have struggled through 3 IUI's, 6 rounds of IVF, several RE's, hundreds of appointments and the loss of three little angels. Now we find ourselves the proud parents of two perfect little girls and a wonderful little boy!!

Both of our girls struggle with some disabilities but that won't keep us down. Each day has it's own brand of insanity but we love it. Most days I am more monkey wrangler than mother but I do the best I can. Todays goal - getting to tomorrow.

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