Life with Coco and Gigi... and Jack-Jack too!

Life as a Mom, A Homesteader, A Blogger and A Wife.

Denied for DDD

I think I may have mentioned a while back that we were applying for DDD for Abby. It would be money set aside for her therapy equipment, safety equipment and additional therapy and classes for her OT and PT needs. She initially got denied because she did not have an official diagnosis. It pissed me off b/c kids with much lesser needs get it all the time and yet she did not. When she finally got the RS diagnosis we supplied DDD with the new information and I figured with a diagnosis that states she will have long term special needs how in the hell can they deny her.

Well, they did. So some a$$hole who has never heard of Rhombencephalosynapsis thinks they know what it means or how it will impact Abby lifelong. I just wonder why in the hell it has to be such a huge freaking battle. I'm not asking for more that her fair share. I don't need tons of money. I just want to put up a safety stair rail and find a gymnastics class that can meet her needs. I don't feel like I'm asking all that much here.

So they want us to reapply when it has been a year. I am hoping they mean a year from her initial application because that would be Sept. And if they deny her this time I will be appealing it until the cows come home.

So stupid.

7 comments:

Christina 7:20 PM  

I'm sorry. *hugs*

Journey Through Toddlerhood 8:27 PM  

I am so sorry to hear that this approval didn't go through. I don't know what goes into an application, but does it include something from her doctors explaining exactly what her needs are and what her future needs might be? If not, would that help? Hopefully when you reapply, whoever is in charge of granting these approvals will re-consider. Can you appeal it?

I wish you lived closer to me, I would love to have her in my gymnastics class! We get so many little ones that have been referred to us by OTs and PTs to help with muscle strengthening and coordination, stair climbing, jumping, climbing, etc. It is one of my favorite classes :o).

Kristen 9:22 PM  

Thanks Meg. I wish we lived closer too! Unfortunately the application included all the info about her diagnosis and prognosis. Honestly I am dumbfounded how she could be outright denied. I think we might have to appeal their decision or else they want us to wait an entire year.

Aleigh 10:47 PM  

That is unbelievable! I am so sorry they are so clueless. Hugs.

kewd 11:56 PM  

Oh Kristen, I am sorry. That is just crappy.

Anonymous 1:57 PM  

Kristen,

In my experience with Disability (I worked for the Dept. of Mental Health for years), most folks are turned down the first time they apply. If you are turned down the second time and have to appeal, you really should think about hiring an attorney. Not the type that advertises on TV, but someone legit, that can assist your family. In my experience, those that appeal without an attorney, are often denied. Hope that helps, if you did not already know.

Kristen 9:03 PM  

Thanks Anon. I did not know that. I will make sure to talk about it with our social worker when we meet.

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Over 8 years we have struggled through 3 IUI's, 6 rounds of IVF, several RE's, hundreds of appointments and the loss of three little angels. Now we find ourselves the proud parents of two perfect little girls and a wonderful little boy!!

Both of our girls struggle with some disabilities but that won't keep us down. Each day has it's own brand of insanity but we love it. Most days I am more monkey wrangler than mother but I do the best I can. Todays goal - getting to tomorrow.

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